Greenfoley: Alexis

Showing posts with label Alexis. Show all posts

Wednesday, November 10, 2010

Alexis update

Directly from the source (Katie)...

Alexis is doing so much better! She was transfered out of picu on Sunday (?) afternoon (the days run together here) and she spent all of yesterday laughing and playing. She is only hooked up to 4 pumps instead of 8 and when she starts eating enough to maintain herself....they're gonna let us out!! :)

Sunday, November 7, 2010

Alexis update

Alexis is feeling better today. She is still very tired but doesn't seem to be in pain. She is starting to eat and drink (barely) and hasn't puked in 4 days!! Her blood counts are coming up very slowly (with some help from transfusions) and she MIGHT get out of picu tomorrow!

Thursday, November 4, 2010

Alexis update

Katie sent me a message a bit ago saying that they are moving Alexis into pediatric intensive care this morning. She is having an issue with retaining fluid and has pneumonia in her right lung. She is on oxygen. Please please please keep praying for her.

Friday, October 29, 2010

New Alexis picture

Katie just sent me this a few minutes ago...
Michelle - Sent from my Verizon Wireless BlackBerry

Thursday, October 28, 2010

Knit by Michelle - fundraising for Alexis

I am a knitter, I believe I have mentioned this before. I have started making items to sell to help raise money for Katie and her family. I have been making things as people order them but I am thinking of making up one or two special things and setting up an Ebay auction. Since I can only knit so fast I am thinking this has the potential to bring in overall more money for them since individual items bring in some money but a nationwide auction for something like this I think would really have the potential to raise some money. What do you think? Here are a few of the items I have made so far...

Alexis update

Alexis had her stem cell transplant done on Tuesday. She looks terrible and she sleeps a lot but sometimes she has enough energy to play. That night she patted her bald head and said lotion....apparently her head felt dry! lol!!

Monday, October 18, 2010

Alexis update

Alexis was admitted to the hospital this morning. Her little brother William was there but will not be able to be there again for quite a while due to her exposure limitations. She starts chemo tomorrow. Her 7th round and this one is the big one to prep her body for the stem cell transplant. She has a new round of doctors now, a new routine and new ways of getting things done. The world is pretty stressful right now, please keep the family in your thoughts and prayers.

Michelle

P.S. I have had several people asking me about sending cards to Alexis. Please email me privately for a mailing address.

Thursday, October 14, 2010

Alexis update

Alexis will be admitted on Monday for stem cell transplant. It will be minimum of 6 weeks in the hospital with many rules and precautions as her immune system will be completely wiped out. This is a risky time for her. If you could, please keep her in prayers, thoughts or well wishes, whatever your faith prompts you to do. She will also be undergoing immuno therapy for 9ish months so even though she is in remission, her road to recovery is still a long one. For more information on Alexis please see the previous post Alexis.

Sunday, October 10, 2010

Alexis

This is Alexis

She is my baby sister Katie's daughter. Alexis was born 2/7/2009. In May of 2010 she was diagnosed with stage 4 neuroblastoma, a rare form of aggressive cancer in children.Most of the summer of 2010 was spent at Helen DeVos Children's Hospital in Grand Rapids, Michigan as she underwent round after round of chemo, developed c-diff, an infection of the digestive system, and was in and out of isolation.

In September she went through her 6th round of chemo. Afterward she had an MIBG scan to see how much of the cancer remained - it came back CLEAR, SHE IS IN REMISSION!!!! She still has to go through an intensive round of chemo followed by a stem cell transplant and 9ish months of immunotherapy since neuroblastoma is so hard to kill completely and comes back very easily.

Please keep my baby sister, her daughter and the rest of her family in your prayers. Also keep an eye out for updates, they will all be labeled "Alexis" and I will add links at the bottom of this post when I update as well.